Earlier this week a post appeared on my Instagram. Now I know the world is a little insane, and we have a day, week and month for just about everything. Personally I find it a bit over the top and I tend not to keep up with all of them. This post was particularly shocking to me when I saw it, because it was just … Continue reading The social media debate on EDAwarenessWeek and World Obesity Day
It’s been a hectic few weeks and I’ve not had much chance to sit and write. Luckily, there has been little MC4r news updates in the time I’ve been away. This tends to be the time I look into weight loss news, and it never disappoints to amaze me. Weight loss news saturated the internet with some of the most toxic content between commenting on … Continue reading Men vs Women: Double standards in media
I never know how to start a blog post, so let let’s just cut to the chase. Today I’m going to combine two posts because one is fairly small. There is not much news in the world of MC4r, but some results have been published regarding Rhythm Pharmaceuticals Phase 3 Clinical Trial for Bardet-Biedl Syndrome. Overall, patients reported clinically meaningful improvements across multiple health-related quality … Continue reading Genetics or Lifestyle: 60 minute segment sparks debate about the causes of obesity
I hope all reading this had a very merry Christmas and are looking forward to the new year! I’ve been out of touch lately and I want to post more frequently in the new year. Hopefully with more positive news such as my last post. Hopefully things continue as they have been and 2023 will shape up to be a good year for those of … Continue reading Scientists link second gene to appetite regulation in MC4r gene
Rhythm Pharmaceuticals has announced that IMCIVREE (setmelanotide) has been granted marketing authorisation in Great Britain for treatment of obesity and control of hunger in Bardet-Biedl Syndrome. Firstly this is great news! After the last post I made, I thought it would take months, maybe even years before a drug like this would be given authorisation in the UK, considering how strict someone of their health … Continue reading Christmas has come early for MC4r patients with Bardet-Biedl Syndrome in the UK
This blog post containing language about periods and female contraceptives. If this type of language makes you feel uncomfortable this blog post is not your cup of tea and I recommend you try one of my other posts. Every 28 days women experience their period, but what does this have to do with weight or MC4r? Well if you’re on a contraceptive it may have … Continue reading Are contraceptives stopping you from losing weight?
In my last post I said something in passing I’d like to talk more about. I’ve had an MC4r deficiency diagnosis for about eight years and in that time I’ve only met one other person who has heard of MC4r. This encounter happened while in the waiting room of a hospital while I was waiting to see my neurologist regarding my migraines. My mum who … Continue reading Why more doctors need to know about MC4r
Last I posted it was with regards to my mental health, while an uphill battle I’m on the mend and seeing better days. I’ve wanted to get back to posting regularly and hope I can put my best foot forward today. I’m going to begin with something that brought a smile to my face when I read it, Rhythm Pharmaceuticals has announced the publication of … Continue reading Rhythm Pharmaceuticals has announced the publication of a children’s book “Gabe’s Story”
The other week I started to write a post and part way through I lost myself, and stopped. I felt like I was just writing aimlessly and that’s not my style so in good conscious couldn’t publish it. I will address that I’ve changed my web address, simple answer; I’m trying to save some money so I downgraded my plan. But this blog is still … Continue reading Finding the diet that works for you and sticking with it
First I’ll start with an apology for being MIA; I’ve had the worst spell of migraine attacks. Unfortunately when I have an attack they can last anywhere between a few days to two weeks and I’ve been down for about two weeks. Still not 100% but on the mend. I’ve had a few things I’ve wanted to talk about, but my brain feels like mush … Continue reading Rhythm Pharmaceuticals modify design of ongoing MC4r treatment following FDA feedback
So firstly, apologies for my absence. Just before Christmas I ended up catching COVID, I didn’t really tell anyone about it except the people I had to. I didn’t really want to make a big song and dance about it. Everyone has either had it or will have it at some point. I do have some ongoing issues, which is why I currently sympathise with … Continue reading Happy New Year: Find what works for you and stick with it
Every now and then I like to steer away from MC4r and talk about mental health. A persons weight can have a massive impact on their mental health, and it’s reflected in almost everything we see. Recently I found myself in a strange place, and decided to reflect on it. One of the most googled “how to” searches is “how to lose weight” and I’ve … Continue reading Mental Health: Learning from negative emotions
MC4r and ME 