Earlier this week a post appeared on my Instagram. Now I know the world is a little insane, and we have a day, week and month for just about everything. Personally I find it a bit over the top and I tend not to keep up with all of them. This post was particularly shocking to me when I saw it, because it was just … Continue reading The social media debate on EDAwarenessWeek and World Obesity Day
It’s been a hectic few weeks and I’ve not had much chance to sit and write. Luckily, there has been little MC4r news updates in the time I’ve been away. This tends to be the time I look into weight loss news, and it never disappoints to amaze me. Weight loss news saturated the internet with some of the most toxic content between commenting on … Continue reading Men vs Women: Double standards in media
I never know how to start a blog post, so let let’s just cut to the chase. Today I’m going to combine two posts because one is fairly small. There is not much news in the world of MC4r, but some results have been published regarding Rhythm Pharmaceuticals Phase 3 Clinical Trial for Bardet-Biedl Syndrome. Overall, patients reported clinically meaningful improvements across multiple health-related quality … Continue reading Genetics or Lifestyle: 60 minute segment sparks debate about the causes of obesity
I think we live in a fantastic age of medicine, and it will only get better with time. I’m so pleased to see the amount of research that is being done into obesity and our genes. It makes me hopeful that one day, when a person says their weight is the cause of a medical condition a person won’t look at them sceptically. To this … Continue reading Study links genetic rearrangement to obesity
I hope all reading this had a very merry Christmas and are looking forward to the new year! I’ve been out of touch lately and I want to post more frequently in the new year. Hopefully with more positive news such as my last post. Hopefully things continue as they have been and 2023 will shape up to be a good year for those of … Continue reading Scientists link second gene to appetite regulation in MC4r gene
Rhythm Pharmaceuticals has announced that IMCIVREE (setmelanotide) has been granted marketing authorisation in Great Britain for treatment of obesity and control of hunger in Bardet-Biedl Syndrome. Firstly this is great news! After the last post I made, I thought it would take months, maybe even years before a drug like this would be given authorisation in the UK, considering how strict someone of their health … Continue reading Christmas has come early for MC4r patients with Bardet-Biedl Syndrome in the UK
Lately social media has been a keen topic of discussion in my life. The general consensus is that it’s a toxic environment and has a big impact on mental health. I wrote a blog post previously on detoxing your social media. This is something I like to do fairly often, especially since social media algorithms have a habit of clouding our feeds with unrealistic and … Continue reading The impact of social media on mental health
I originally wasn’t going to talk about this but I’ve mentioned intermitted fasting a few times now. I don’t like the idea of promoting a diet so I’m going to do my best to not sound like I am. Over the years I’ve tried many diets from not eating carbs to keto and more; in the end, they’re not for me or sustainable. Around Christmas … Continue reading My experience with intermittent fasting
This blog post containing language about periods and female contraceptives. If this type of language makes you feel uncomfortable this blog post is not your cup of tea and I recommend you try one of my other posts. Every 28 days women experience their period, but what does this have to do with weight or MC4r? Well if you’re on a contraceptive it may have … Continue reading Are contraceptives stopping you from losing weight?
In my last post I said something in passing I’d like to talk more about. I’ve had an MC4r deficiency diagnosis for about eight years and in that time I’ve only met one other person who has heard of MC4r. This encounter happened while in the waiting room of a hospital while I was waiting to see my neurologist regarding my migraines. My mum who … Continue reading Why more doctors need to know about MC4r
Last I posted it was with regards to my mental health, while an uphill battle I’m on the mend and seeing better days. I’ve wanted to get back to posting regularly and hope I can put my best foot forward today. I’m going to begin with something that brought a smile to my face when I read it, Rhythm Pharmaceuticals has announced the publication of … Continue reading Rhythm Pharmaceuticals has announced the publication of a children’s book “Gabe’s Story”
It’s going to be a short post today. Generally when I write it’s because I want to share a story, a personal experience or something positive. I hope to motive change or educate and raise awareness about obesity related disorders. However, I’m only human. I’m a human who alongside MC4r also suffers with chronic headaches and migraine, fibromyalgia, depression and anxiety. This is why I … Continue reading It’s okay to not be okay
MC4r and ME 